Resources

Finding Support, Building Community

Finding the right support can make a meaningful difference for children with special healthcare needs and the families who care for them. At Zebra Crossings, we believe that every family deserves access to information, opportunities, and a strong community of support. To help families navigate their unique journeys, we have compiled this collection of trusted resources from across New Hampshire, Maine, Massachusetts, and the broader New England region.

These organizations and programs offer a wide range of services, including healthcare support, advocacy, education, recreation, camps, family networking, and community-based resources. Whether you are seeking guidance following a new diagnosis, looking for specialized programs for your child, or hoping to connect with other families who share similar experiences, we hope these resources serve as a helpful starting point.

As we learn about new programs and opportunities, we will continue to update this page to better support the children and families we serve.

Disclaimer: Zebra Crossings provides this resource list as a service to families and caregivers. The organizations and programs included here are independent of Zebra Crossings, and inclusion does not imply endorsement. Families are encouraged to contact organizations directly for the most current information regarding services, eligibility requirements, availability, and costs.

Last updated: June 16, 2026

New Hampshire

1. Parent Information Center & New Hampshire Family Voices

The Parent Information Center and New Hampshire Family Voices, are statewide organizations that have been working with families, children, and the professionals that support them for over 40 years. Our organizations provide information and training to help families, providers, and systems builders make informed decisions so that NH families can get the support they need to see their children thrive. Our Organizations – Parent Information Center of NH

2. New Hampshire Special Medical Services / Bureau for Family – Centered Services

Administers programs for children under 21 who have—or are at risk for—chronic medical conditions or disabilities. Services include specialty healthcare, service coordination, assistive technology, and respite supports Children with Special Health Care Needs | New Hampshire Department of Health and Human Services

3. NH Children’s Health Insurance Programs (CM, Expanded CM, CSD, Katie Beckett/Waiver)

These Medicaid/CHIP programs cover eligible children under 19, and the Katie Beckett Waiver allows medically complex children to receive long term services while living at home regardless of family income NH Medicaid (Medical Assistance) Eligibility for Children | New Hampshire Department of Health and Human Services

4. NH & ME Pediatric Neurology / Dartmouth-Health Project Access 

For families managing epilepsy or seizure disorders, Dartmouth-Health’s Project Access offers both New Hampshire and Maine resources for care coordination, financial assistance, and online tools Dartmouth Health Children’s+1Dartmouth Health Children’s+1

5. Community Health Partners NH

Community Partners connects the individuals and families we serve to the opportunities and possibilities for full participation in their communities. Community Partners – Behavioral Health & Developmental Services of Strafford County

6. Parent Project Muscular Dystrophy

New Hampshire Resources – Parent Project Muscular Dystrophy

7. Zebra Crossings

Year-round family and individual camps and programs for children with a variety of chronic medical health concerns. Homepage – Zebra Crossings

8. Camp Meridian

Free weekend-long overnight camp providing adventures for children with congenital heart conditions (ages 8-17). Camp Meridian – Homepage – Camp Meridian

9. On Belay

Free year-round adventure programs provide support and empowerment for kids dealing with a loved one’s cancer. (ages 8-18)  On Belay

10. NH Mental Health Care Access in Pediatrics (MCAP)

New Hampshire — NNCPAP National Network of Child Psychiatry Access Programs

11. Kinship Strong Support Group at Waypoint

 Every 3rd Wednesday of the Month, 6:00 PM to 7:00 PM, Contact [email protected] 603-540-1093

 The Kinship Navigation Program provides free, voluntary, and confidential services throughout New Hampshire, linking kinship caregivers to programs and supports like state benefits, and community information and resources.

12. Camp Fatima 

 One week Co-Ed overnight camp program for campers 9+ of age with special needs. Special Needs Week | Camp Fatima NH

13. Future In Sight: Walk for Sight

Each Spring in Downtown Concord, NH

14. Northeast Passage

The mission of Northeast Passage is to empower people living with disabling conditions, both visible and invisible, to define, pursue and achieve whole life health, community engagement and fulfillment through the purposeful use of sports and recreation; to develop and promote best practices in the fields of Therapeutic Recreation and Adaptive Sports.

Northeast Passage | University of New Hampshire

15. POTS of the Seacoast Support Group

Support group for people with POTS.  Meets once a month in Dover.  POTS of the Seacoast

Maine

1. Maine CDC – Special Health Needs of Children Programs

Includes birth defects screening, newborn hearing & bloodspot screening, cleft lip & palate programs, care coordination services, and MaineCare’s Katie Beckett Option for medically-eligible children under 19 Special Health Needs of Children | AccessMaineaccessmaine.org+1ccmaine.org+1.

2. Children’s Behavioral Health Services (CBHS)

Through Maine DHHS/OCFS, CBHS helps connect children under?21 to mental and behavioral services. It supports families in identifying help, referrals, and accessing services Children’s Behavioral Health Programs and Services | Department of Health and Human Services

3. Maine Pediatric & Behavioral Health Partnership

A telehealth & peer consultation service that connects PCPs with child/adolescent behavioral health professionals. Enables better access for rural or underserved areas. Includes training resources like Project ECHO and phone consultation lines Maine+1Northern Light Health+1.

4. MaineCare – VitalCare for Kids (EPSDT)

Medicaid’s EPSDT program for children under 21 covers early screenings, developmental, behavioral, dental, specialty services, and medically necessary equipment not normally covered Maine.

5. 211 Maine – Child Development Resources Portal

A free, confidential helpline (call 211 or text zip to 898-211) that connects families to local resources like developmental screenings, occupational/speech therapy, behavioral supports, dental/oral health, case management, parenting support, and more 211 Maine+1accessmaine.org+1.

6. Mental Health Care Directory

 Mental Health Facilities in Maine | Inpatient & Residential Treatment

7. Camp Waban

A camp for people of all ages with developmental disabilities and other special needs.

Sanford ME 307-324-7955. Waban – The Dead River Collective

8. Maine Parent Federation

Brings the power of knowledge and voice to families of children/dependents with special needs assisting in opening the gateway to systems of care.

Welcome – Maine Parent Federation

Massachusetts

1. Comfort Zone Camp

A Bereavement organization that transforms the lives of children who have experienced the death of a parent, sibling, primary caregiver, or significant person. Our programs are free of charge and include trust-building activities and age-based support groups that break the emotional isolation grief often brings. Comfort Zone’s programs are offered to children ages 7-17, and their families for the family programs, plus we offer young adult programs for 18-25-year-olds. Free Grief Camp + Support for Grieving Kids | Comfort Zone Camp

**will be opening a NH camp soon!**

2. Massachusetts Child, Youth and Family Services

 DMH Child, Youth, and Family Services | Mass.gov

Services for Children and Youth with Special Health Needs | Mass.gov

3. Special Needs Summer Camps Directory 

Summer Camps in Massachusetts For Individuals With Special Needs

4. Federation for Children with Special Needs

The Parent to Parent (P2P) program connects volunteer trained support parents with caregivers seeking support around parenting children who have disabilities and/or medical complexities. Parent to Parent of Massachusetts – Federation for Children with Special Needs

Specialized Camps throughout New England:

1 .Double H Ranch

The Double H Ranch, co-founded by Charles R. Wood and Paul Newman, provides specialized programs and year-round support for children and their families living with chronic and serious illnesses. Our purpose is to enrich their lives and provide camp experiences that are memorable, exciting, fun, empowering, physically safe and medically sound. All programs are FREE of charge and capture the magic of the Adirondacks! Double H Ranch: Camp for Critically Ill Children | About Us

General Resources

1. Kids & Caregivers

Resources for caregivers of kids living with disabilities and complex health needs. 

A resource for caregivers of kids living with chronic medical conditions

2. Coping with Chronic Illness

Coping with Chronic Illness – CHOC – Children’s health hub

3. Retinopathy of Prematurity

A free resource library to educate families of children with ROP. Presented by a dedicated website at https://preventblindness.org/retinopathy-of-prematurity-rop/ For additional information contact [email protected]

4. New England Consortium (NEC) Deaf blindness

We are a collaborative system that enables infants, children, and youth who are deafblind to participate meaningfully in their homes, schools, and communities. We provide free services in Connecticut, Maine, Massachusetts, New Hampshire and Vermont.  https://www.perkins.org/nec/

5. Easter Seals 

Our national Affiliate network provides essential services to children and adults with disabilities, older adults, veterans and their families. Easterseals Disability & Community Services