Proteus Syndrome

Our current programming for our Proteus syndrome families includes Proteus Camp (held every other year) and our monthly day programs open to all youth with chronic health conditions.

Click here for more information about our monthly day programs.

PSF Family Sunshine Retreat

June 19 – 22, 2025

At the Barbara C. Harris Camp and Conference Center

Greenfield, NH

An overnight camp for children with Proteus syndrome

and their families.

Email [email protected] to learn more about Proteus Camp.

Zebra Crossings’ Proteus Camp is held in collaboration with The Proteus Syndrome Foundation.

This camp is an opportunity to connect with other Proteus syndrome families, relax, and have fun.

Registration Rates

$150 participants over 18, $100 youth ages 5 through 18, $25 children under 5, $500 Family rate cap.

Registration rate scholarships are available. Requests can be made by contacting Zebra Crossings’ program director,

Emily Mundy, at [email protected]

FAQ’s

What are the closest airports to Barbara C. Harris Camp & Conference Center?

Boston, MA Logan Airport (BOS) is 76 miles (1.5 hr drive) away, and Manchester, NH Regional Airport (MHT) is 31 miles (51 minute drive) from Barbara C. Harris Camp & Conference Center.

Are there scholarships for travel expenses?

The Proteus Syndrome Foundation can provide small travel grants. Contact Kim Green at [email protected] to apply for a travel grant.

What to expect:

Our staff and the Camp staff with greet you upon arrival.
We will have planned activities and meals, as well as downtime for families to rest and relax.
We will host this camp rain or shine, but don’t worry our host camp has both indoor and outdoor activity areas.

Sample Activities:

Arts & Crafts
Water Activities
Lawn Games
Archery
Ropes Course
Campfire

Parents are part of the equation, too, and we want to carve out time for parents to connect with each other. A relaxed and regulated parent is a parent who is able to face their child’s needs without fear or judgment. In turn, this means that the child does not worry about being “different” and is able to be centered and fully present. This allows them to learn and grow, because they feel safe and “ok.”

Info about our host campground:

Location: Barbara C. Harris Camp & Conference Center, 108 Wally Stone Lane, Greenfield, NH 03047

The Barbara C. Harris Camp and Conference Center offers hotel style lodging with private bathrooms. In addition to the beautiful outdoor recreation areas Barbara C. Harris Center also has large indoor recreation areas to allow for a wide range of accessible activities rain or shine.

We’re coming! What should we bring?

We will find a balance between indoor and outdoor activity options. The weather has been varying widely lately so please dress in layers to accommodate for all temperature and weather conditions. In addition, if it is raining, the ground will be muddy in areas. We recommend bringing comfortable clothing that allows you to play!

Essentials:

Any medications you might need
Water bottle
A book or a favorite game to play with friends during downtime
Daypack to carry all belongings
Flashlight and batteries

Linens And Bedding:

1 fitted sheet, pillow & pillowcase
1 sleeping bag
2 towels and washcloths

Toiletry Items:

Shower shoes (flip flops, plastic shoes)
Toothpaste and toothbrush
Soap, Shampoo and Conditioner
Sunscreen: SPF 40 or higher, waterproof recommended
Insect repellant
Lip balm

Clothing:

- - At least 1 pair of sneakers required for outdoor activities
  - An extra pair of indoor shoes or slippers
  - 1 Pair of long pants
  - 4 Pairs of shorts
  - 4 Shirts
  - Swimsuit
  - 1 – 2 Sweatshirts or light weight jackets
  - Raincoat or poncho with a hood
  - Pajamas
  - 4 – 5 Pairs of socks (include warm ones)
  - 4 – 5 Pairs of underwear
  What to leave at home:
  - Jewelry, money or other valuables
  - Pocket knives or weapons of any kind
  - Gum, candy, snacks. If you bring items to supplement dietary needs, please avoid all nuts.

Email [email protected] for more information.

“I am not sure there are many places where there are such kind, caring people. It is also a place where others have chronic illnesses, some the same as yours. It makes it a lot of fun to just talk and relate to someone that you can’t necessarily do at school.”

- Teen participant

“Zebra Crossings is a fun place where you can go and feel safe because they understand how you feel. You get to express yourself and experience all kinds of things and nothing holds you back.”

- Luke, age 10

“Before camp my son was embarrassed to go to the nurse. He wouldn’t take meds before gym, and then tried to hide his asthma symptoms and chest/lung pain.” Since camp, my son has been willing to take albuterol before gym class, has been more confident and willing to participate in groups with active outdoor activities.”

- Asthma Camp Parent

“Zebra Crossings has given my children a power they never would have learned to unleash. Here, they feel accepted, encouraged and understood. They are taught that what they believe to be their inadequacies, can really be the fire that burns inside of them and makes them a stronger, more courageous, and joyous person. Truly, Zebra Crossings has changed our lives for the better.”

- Thaia Katsos

“It is an amazing experience to not feel alone in the world. To meet and share some wonderful kid stories has given me and my family so much hope for the future”

- Family Camp Parent

The efforts of Zebra Crossings are supported by our generous sponsors, both individual and business. Want to join the ranks?

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